Tiny Little Boxes

Hi Kathleen MacKenzie, I’m here for a PET scan. The man at the desk was probably in his 60’s. Salt and pepper hair, a mustache. He seemed like an ordinary guy for Boston. I have no idea what an ordinary guy working in Boston is supposed to look like, but my brain is working overtime these days to make sense of everything and everyone.

The man takes my date of birth before looking up and when he does, he sees me and three other people huddled close behind me. We are a group of people, but I never really looked at it this way. “These are my people”, I say. All of them? He asks. I shook my head to affirm that yes, all of them.

If you are reading this, you are my people too. You have decided to join me on this journey. The journey through full diagnosis and treatment of Metastatic Breast Cancer. My oncologist believes that I am possibly at stage 4, but the bone biopsy that is scheduled for 2/12 will either confirm that or show that it’s a different cancer. Either way, I start Chemotherapy and Immunotherapy on Friday 2/13/26.

Journaling has always been a therapeutic format for me to process thoughts and feelings but it’s also a way for me to put myself out there. Maybe there is someone else out there experiencing this for themselves or for a family member. I want you to know that you are not alone and I will walk with you on your journey for as long as you want me to. Let’s walk this road together for a bit and normalize all the feelings that we are having right now.

Let’s talk about grief. Grief is an emotional, psychological and physical response to significant loss. Typically, people think of grief regarding the death of a loved one, but grief can encompass other profound losses, like health or even relationships.

Grief is a unique journey and personal to whomever is experiencing it and some days it feels like you take two steps forward only to fall behind three the next.

I am still in disbelief/shock. I have my angry days, refusing to think about it days, just want to sleep days, upbeat days, hopeful days, exhausted days, anxious days, how am I going to show up days, but here I am. Am I killing it? Pffffffttt. No, but there is a lot to be said for my stubborn nature and honestly, I think we are all doing the best that we can right now.

I’ve been contemplating the concept of being a warrior, a fighter in my fight against cancer. Like when is the Warrior in me going to step in?  Why do we try to live up to this picture that isn’t realistic? Being a Warrior and a Fighter isn’t the same thing as being fearless. You can be a Warrior and shake in your boots at the same time. I heard a saying that I really love: “If you can’t beat the fear, just do it scared”.

In the months and years following the passing of my mom I learned how to manage my grief and stress response by picturing them as actual objects in my metaphorical backpack. I learned to recognize the different stressors in my life and how easy it was for them to all take up residency inside my head. Instead, when I was feeling overwhelmed or just couldn’t handle the ‘load’ I was carrying I would picture my imaginary backpack. I would take everything out and reorganize them in my pack and I would weed out items that ‘didn’t fit’. Over time, this coping skill would just take place in my head and become second nature. What am I willing to carry and at what expense.

Sometimes I joke and will say that I am good at compartmentalizing, when in reality?

I WAS good at it, and then I got some unexpected news, and all those little doors? The little doors to the compartments I have jam packed and closed off? They blew right off the hinges. It has taken me a few weeks to recognize these feelings as fear and not the loss of the strong and independent woman that I am. I did not ‘lose my power’, no matter what my brain says. I am a force to be reckoned with even if it means doing it scared.

Choosing Your Table

“So, why don’t you tell me a little bit about yourself, so that going forward we can better understand how to support you.”

I was holding the binder labeled ‘About Your Care’ she had given me upon walking into her office. She was the Program Coordinator for Clinical Resources through Dana-Farber Cancer Institute.

She had already flipped through the nine different tabs of the binder, going over each section.

This isn’t the first time that I have felt outside of my own body since I started this journey. I was floating above the conversation, hearing her talking about a floor you can visit where they will fit you for a wig.

I have my support team there with me though. My husband of 19 years, my sister and my brother-in-law whom I have known since I was 12.

What I shared vs. what I wish I had shared about myself.

I told her that everything felt out of control in my life and the level of despair I was feeling. I shared with her that I had experienced trauma through the events that led up to my mom passing away from cancer. The fact that 12 years ago this month we drove through a snowstorm to get my mom to Dana Farber and how triggering it was for me to drive through two days of snowstorms to make it to this appointment. The stress of my mom being so sick around my daughter’s birthday, and now I am the one sick around my daughter’s birthday. Through tears and snot, I told her that I was strong and fierce and I would need reminders of how strong I am.

What I wish I had clearly communicated about myself:

I’ve recently been diagnosed with IBC Triple Negative Ductal Carcinoma, staging still trying to be determined, but I keep hearing that It’s not good just not sure how bad and this is hard because I am a strong and independent woman who enjoys being the one to support others. I am struggling with not being in control which causes fear.

I have worked in the mental health field for the past 22 years. My training is based on providing Trauma Informed Care.

I’ve experienced some shit and I’ve seen some shit in my days, in my personal life as well as work. Those experiences have made me into who I am today. I’m a fighter. I will fight for you. I will believe in you until you give me a reason not to. I will advocate and stand up for what I believe in. If I’m in, I’m ALL in. I believe everyone should feel supported and loved. I’m fierce and unafraid when I’m all in.

Right now? I’m struggling with fear and not feeling in control.  

My quote going into 2026 was: “My biggest competition isn’t other people. It’s my own procrastination. My own ego. The knowledge I neglect, the negative behaviors I’ve been nurturing leading to my lack of creativity. Compete against THAT”

On 1/7/26 I started to think that I would be competing against much more than myself.

On 1/12/26 This was confirmed for me, and I received information that the biopsies of three areas in my breast and two biopsies of lymph nodes in my arm pit tested positive for cancer. I was told that this was very serious as it’s a very aggressive cancer. I hung up the phone from that conversation and embraced the silence of my home and the darkness outside and cried. All I could think about in that moment was my ‘Vision Board’ that I had made less than a week before and in a five-minute phone conversation I watched those goals I had created go up in flames.

My vision board turned into 1/16 Echo Cardiogram, 1/19 Full Body CT with and without contrast, 1/21 Breast Specialist, 1/21 Genetics testing, 1/23 Port placement surgery, 1/23 bone scan, 1/27 consult with oncologist at Dana Farber in Boston, 1/27 Brain MRI, 2/2 PET/CT for NM PET CT Skull base to Mid Thighs with DF CH Pet/CT.

My 2026 Vision board also included a focus on Gratitude. I have gratitude for the quickness of testing I’ve gone through. It will enable me to start chemotherapy sooner rather than later.

I have gratitude for EVERYONE who has remembered me in prayers or has sent me healing energy and positive vibes. To everyone who has messaged me, or has so generously donated financially, to everyone who has shared my link and told my story. To people who have offered to clean my house or cook for me or drive me to appointments. To people who send me funny reels. Gratitude builds strength and I need all the strength I can get right now, cause not only am I going to fight this cancer, but I have work to do while I fight it!

Ending 2025 had me thinking about what ‘tables’ I was sitting at in all the various aspects of my life. I recently ran into this thought after an experience I had that left me asking myself: ‘why would I sit at a table that I’m not invited to’?

I wrote myself a reminder about ‘choosing my table’ this coming year. Being intentional about whom I allow to influence my life.

I would like to invite you to ‘my table’, join me as I talk about my journey through cancer and what my mission is. I know I am not the only one who has received this kind of information. Whether it’s breast cancer, loss of a friend family member. Whatever it is, Let’s support each other. You are not alone, and I will walk with you for a bit on your journey if you need me to. “Hope is being able to see that there is light despite all of the darkness.” -Desmond Tutu

Real Talk: Ramblings from a Moxie Girl.

Real Talk. Ramblings of a Moxie girl

For context it’s 2014, like brand new 2014. You’re riding passenger in a car, headed to Boston. The song Timber by Pitbull and Kesha is blaring over the stereo and you are on your way to see your mom at Dana Farber in Boston. 

Enter 2026 and I can still feel that moment every time I hear that song. The song reaches its peak and it’s full out party mode and I am taken back to that speeding trip on the highway to Boston. We are speeding down the highway and I am questioning Kesha and judging Pitbull. 

This week I’ve heard the opening harmonica line and just enough of that intro to know that I am back on that highway and we are driving way too fast.

I believe my life experiences have shaped me into who I am today. Walking in the shadows of death with someone is not a job to take lightly. 

I remember my mom’s first appointment at Dana Farber. 1/2/14 and helping her in the bathroom. Never in my life didI expect that my assistance with pulling her pants back up would be required. 

When things feel out of control be the helper. Step in, love them, help them be as comfortable as possible. 

Thats the legacy I want to leave behind. Love. Love love love. When you hear those beginning harmonica notes, think of me and remember just how much I love you